Pulmonary fibrosis is a progressive and fatal lung disease
that causes 40,000 deaths annually in the United States. The cause of pulmonary fibrosis is not well understood,
and there is no treatment or cure. Most
people with pulmonary fibrosis live only three to five years after their
Legislation has been introduced in the U.S. Senate and House
of Representatives that would create the first federally funded national
awareness and educational effort to improve understanding of pulmonary fibrosis
in the public and medical communities.
It would also establish a National Pulmonary Fibrosis Advisory Board and
Registry to collect data and make recommendations to the Secretary of Health
and Human Services. The advisory board
would also collect data about other lung diseases and disorders – potentially
helping millions of Americans living with lung disease.
Please ask your Senators and Member of Congress to help
those affected by pulmonary fibrosis and all lung diseases by cosponsoring the
Pulmonary Fibrosis Research Enhancement Act.
Dear [Decision Maker],
Sincerely,[Your Name] [Your Address] [City, State ZIP]
Contact us online or to find a local Lung Association in your community visit the In Your Community page or call 1 800 LUNGUSA.