Urgent Call to Action! On his first day in office, President Trump signed his first Executive Order, which directed his administrative staff to facilitate the rapid repeal and/or replacement of the Affordable Care Act (ACA).
Private health insurance was nearly impossible for those with cystic fibrosis to obtain prior to the Affordable Care Act. Key provisions of the ACA prohibit insurance companies from denying coverage to individuals due to pre-existing conditions; from charging people with pre-existing conditions higher rates; and from placing lifetime or annual dollar limits on essential health benefits. In addition, the ACA allows young adults to remain covered by their parents’ health insurance until the age of 26 years, while expanding the number of children eligible to receive coverage through Medicaid. Currently, over half of all children with CF are covered through this life-saving program.
Repeal of these provisions would be catastrophic for many members of the cystic fibrosis and rare disease communities. Please write to your congress members and senators today, urging them to maintain these protections as they move to repeal and/or replace the Affordable Care Act! In addition to your representatives, your letter will be sent to a group of senators and members of congress who are encouraging a more thoughtful approach for any changes to the ACA. These individuals may play a major role in determining the future of the ACA, and your story can play a key role in determining their vote on this issue. This letter will also be sent to your state representatives, to inform them of your views on this critically important issue.
CFRI’s Many Voices ~ One Voice Advocacy and Awareness Campaign needs your voice. It is critical that your representatives hear from you! Some congress members and senators have proposed delaying repeal of the ACF until a full replacement bill can be created. They must be educated about the value of maintaining the life-saving protections currently contained in the ACA.