Urgent Call to Action! Congress is beginning to discuss proposals for future healthcare legislation. Proposals thus far remove many of the protections that are contained within the Affordable Care Act (ACA), which could be catastrophic for many members of the cystic fibrosis (CF) community.
Key provisions of the ACA prohibit insurance companies from denying coverage to individuals due to pre-existing conditions; from charging people with pre-existing conditions higher rates; and from placing lifetime or annual dollar limits on essential health benefits. The ACA also expanded the number of children eligible to receive coverage through Medicaid.
Proposals being discussed include allowing the sale of health insurance across state lines, a return to high-risk pools, implementing continuous coverage protections, ending the individual insurance mandate, and the placing of per capital limits on Medicaid payments to states. All of these proposals could be catastrophic for many members of the cystic fibrosis and rare disease communities. In fact, they could be catastrophic for anyone who has a pre-existing condition including cancer, high blood pressure and diabetes.
Please write to your Congress Members and Senators today, urging them to reject proposals that will put those with pre-existing conditions at risk. In addition to your representatives, your letter will be sent to a group of Senators and Members of Congress who are encouraging a more thoughtful timeline for any changes to the ACA. These individuals may play a key role in determining the future of healthcare legislation, and your story can play a key role in determining their vote on this issue. This letter will also be sent to your state representatives, to inform them of your views on this critically important issue.
CFRI’s Many Voices ~ One Voice Advocacy and Awareness Campaign needs your voice. It is critical that your representatives hear from you! Some members of the Congress and Senate have proposed delaying repeal of the ACF until a full replacement bill can be created. They must be educated about the value of maintaining the life-saving protections currently contained in the ACA.