The Senate has released its proposed replacement for the Affordable Care Act (ACA), and it contains many provisions that are detrimental to the cystic fibrosis community. We must let our Senators know that this health care act will bring harm to the CF community and the rare disease community. Time is critical!
Provisions within the proposed legislation that will be detrimental to those with CF include significant cuts to Medicaid funding, per capita caps on Medicaid funds to states, the inclusion of waivers related to Essential Health Benefits, higher rates (up to 500%) for older enrollees, a phase out of insurance subsidies and reduced tax credits. The "actuarial value" — the amount that insurance would be required to cover of a person’s medical cost — would be lowered to 58%, down from 70% for the ACA's benchmark plans. This 12% additional cost to consumers could be devastating and would certainly reduce the value of the tax credits. The plan has no individual mandate for insurance, and removes the mandate for large employers to provide insurance to their employees. It is still estimated that with these changes, over 20 million Americans will lose their health insurance by 2026. Please let your Senators know that the only acceptable replacement for the Affordable Care Act is one that maintains vital protections for all, and especially those with pre-existing conditions such as CF, and which enables those with CF and other at-risk populations to secure affordable health coverage.
CFRI’s Many Voices ~ One Voice Advocacy and Awareness Campaign needs your voice. It is critical that your representatives hear from you!