The CMTA is the largest philanthropic funder of CMT research worldwide. The CMTA’s Strategy to Accelerate Research (STAR) brings the best CMT researchers, clinicians, and experts in therapy development together with pharmaceutical and biotechnology companies and patients to expedite the development of treatments for CMT. The CMTA is also actively working to help improve the quality of life for all families living with CMT by offering educational programs and materials, hosting patient and professional conferences, providing support to families through its nationwide branch system through North America and more.

The CMTA was started by patients, and to this day is powered by a community of patients who are engaged in helping carry out and support our mission. The National Foundation for Peroneal Muscular Atrophy (NFPMA) was incorporated in 1983 in Pennsylvania as a 501(c)(3) federally recognized charity. The original founder, Dr. Howard Shapiro, was, himself, a patient with CMT and when he began the organization. He hoped to create interest in the disorder within the medical community while also providing support to patients and families dealing with the little-known problem. From its inception, the NFPMA, now the CMTA, has continued that twofold concern by supporting research on the causes and possible cures for CMT and by focusing on patient education and support.

More information can be found at www.cmtausa.org.