As many people know, I have a disease called Charcot-Marie-Tooth (CMT).   I was aware something was not quite right when I turned 40 and I could not stand up on ice skates any longer. Dr. Erick Schenk diagnosed me with CMT and also tested my parents, they did not have it so I was a spontaneous mutation.  I always knew I was klutzy and uncoordinated but  now I knew why. 

In addition, my son, Adam Groebner, has CMT.

Fortunately I have a great family, friends and faith that God will lead me where he wants me!

I am participating in the Walk 4 CMT event, in Minneapolis, to raise money for the Charcot-Marie-Tooth Association (CMTA).  I would love to have you join me!  The walk details are as follows:

Walk Location: Hyland Lake Park Reserve Sunnyside Picnic Area, 10145 Bush Lake Road, Bloomington, Minnesota 
Walk Date: May 11, 2024
Walk Time: 10:00 a.m.

WHAT IS CMT?

Charcot-Marie-Tooth (shar-ko¯’ mä-re´ tooth) or CMT is one of the most common heritable neuromuscular diseases, affecting one in 2,500 people worldwide.  CMT affects the long peripheral nerves that control the muscles.  CMT is found in both genders and in all races and ethnic groups and affects more than 3 million people worldwide.  Although CMT is typically inherited from one’s parents, it can also develop as a result of a new or spontaneous mutation.  People who have these “de novo” mutations can then pass the condition on to their children.  Usually slowly progressive, causing loss of normal function and/or sensation in the feet/legs and hands/arms.  Currently incurable, but not usually fatal, CMT can be severely disabling in some people. 

The CMTA is a 501c3 non-profit working with world-class partners to advance treatment-oriented research through STAR (Strategy to Accelerate Research). 

I would love to have your support in any way possible.