Finding treatments and cures for Charcot-Marie-Tooth disease (CMT) is important to me, my family, and many of my new friends. Research into CMT is close to my heart, because my fiancé David is a person with CMT and his late father Dave also had CMT.
CMT is named after the three doctors who discovered it. Unlike the name suggests, it is not actually a tooth disease. CMT is an inherited peripheral neuropathy affecting 3 million people worldwide. CMT affects the peripheral nerves that control one's muscles (unlike muscular dystrophy that affects the muscles themselves). It is a progressive disease that can cause loss of function and sensation in the feet, legs, hands, and arms.
I am participating in the Walk 4 CMT event to raise money for the Charcot-Marie-Tooth Association (CMTA). The CMTA is a 501c3 non-profit working with world-class partners to advance treatment-oriented research through STAR (Strategy to Accelerate Research).
To people with CMT, STAR research for a cure means regaining feeling in the extremities, walking without tripping, buttoning shirts and being able to pick up change off a flat surface with ease. STAR is synonymous with stopping the progression of CMT and living a life free of limitations.
STAR is hope for a future without CMT.
This walk season, it would mean the world to me if you would consider donating to Charcot-Marie-Tooth Association: Strategy to Accelerate Research (CMTA-STAR). Every little bit helps make a difference for people living with CMT!
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