Thank you for checking out my fundraising page. Seven years ago (this month!) I was diagnosed with CMT Type 1 thanks to the above and beyond care of one exceptional doctor. Before then, it was decades of visiting specialists with little knowledge or motivation to understand my experiences and symptoms.

Since then, the progression of this disease has been both mentally and physically draining. I have lost the ability to walk any distance without the use of braces, I have very little sensation below my knees and wrists, and I experience painful muscular and nerve episodes when I am ill or try to push my physical boundaries. Basic dexterity skills like tying my own shoes, buttoning my own buttons, and hitting the right keys on a keyboard have become challenges for me. Every individual with CMT has a different progression rate and different side effects, but it is lifelong and generates a serious impact on all of our lives as we age.

I have discovered how important it is to remain positive and contribute to solutions so future generations can avoid this hereditary disease, experience a slower progression of it, or have affordable access to medical equipment and assistive technology to improve their quality of life. 

By donating to this fundraiser, you can be a part of my fight. CMTA continues to work with scientists and volunteers to test treatments for FDA approval. We have a long way to go, but I appreciate you listening to my story and considering a donation.