We are the Hubbard, Tsai and Kuo families and we are Team Dragon! Our team is excited to participate in the Achilles 4 Mile Run/Walk in NYC on June 23rd, 2024.  We are running and walking in order to raise money in support of the Charcot-Marie-Tooth Association (CMTA) in its goal of finding a cure for Charcot-Marie-Tooth disease (CMT).

The CMTA is a 501c3 nonprofit organization working with world-class experts to advance treatment-oriented research through the CMTA-STAR (Strategy to Accelerate Research) program. The organization has long demonstrated excellence in best practices and industry standards ― as noted by charity evaluation groups like Charity Navigator, which most recently gave the CMTA a perfect rating across all areas ― allowing donors and families like us to give with the confidence that each dollar is used efficiently and effectively to find a cure.

CMT refers to a group of inherited disorders that cause damage to the peripheral nervous system, which controls muscle movement and function in the body. These disorders are characterized by progressive loss of muscle tissue and touch sensation across various parts of the body, particularly in the arms and legs. CMT affects almost 1 in every 2,500 people in the US and about 3 million people worldwide, making it one of the most common inherited neurobiological disorders identified to date. The use of braces, canes, and other mobility aids for walking and locomotion is common among people with CMT.

For people with CMT, STAR research for a cure means regaining full feeling in the extremities, walking without needing to meticulously plan each step, buttoning shirts without struggling to grasp the buttons, and easily picking up change off a flat surface. The goal is slowing, stopping, and reversing the progression of CMT, and living life without struggling to move through it. It is the hope for a future without the limitations of CMT.

Please help make a difference in the lives of those living with CMT and for our generations to come. Whatever dollar amount you are able to donate will help change lives.

Thank you in advance for your generosity.