I was diagnosed with CMT in August of 2022. For five years beforehand, I had been experiencing strange symptoms like limping, not being able to run or jump, and accelerating weakness. I was told by my initial doctors that my symptoms were psychological- and that I needed therapy to resolve them. 

However, after my diagnosis- for which I have the dedication of my family and friends to thank- an entire world was opened. Not only did I feel relief at my diagnosis, I was launched into a community that is generous and kind! I had no idea that there were hundreds of others like myself- my world was no longer so lonely.

Currently, there is no cure for CMT. I am fortunate enough to be in a clinical trial that is showing promising results- but most other forms of CMT do not have this privilege. 

Clarissa Lesky