Thanks in advance for supporting me! Working together, #Let'sBeatCMT!
I'm part of the Walk 4 CMT Chicago Branch event to raise money for the Charcot-Marie-Tooth Association (CMTA). The CMTA is a 501c3 non-profit working with world-class partners to advance treatment-oriented research through STAR (Strategy to Accelerate Research).
To people with CMT, STAR research for a cure means regaining feeling in the extremities, walking without tripping, buttoning shirts, and easily picking up change off a flat surface. (And yes, if you're curious, those are all problems I havel.) STAR is synonymous with stopping the progression of CMT and living a life without limitations.
CMT is an inheritable nerve disease causing the sensory and motor nerves to malfunction. Over time, people with CMT experience muscle atrophy/weakness and loss of sensation in the hands/arms and feet/legs.
Other symptoms of CMT may include loss of balance, fatigue, breathing difficulties, contractures, drop foot and loss of mobility. Everyone is affected differently by these symptoms. It's a progressive disease and right now there is no cure - but research is so close to finding a way of halting and changing that! For the many who live with the daily challenges and pain that are often involved... well, I hope to be in that last generation. Wouldn't that be wonderful??? There's hope for the young...
Yes, STAR is HOPE for a future without CMT.
Please help make a difference in the lives of those living with CMT and for our generations to come.
Together, with your support, we can reach our fundraising goal.
Thank you in advance for your generosity. Or to put that in MY very own words, thanks bunches for any way you can help.
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