Three years ago, Violet was diagnosed with CMT type 4A. Charcot-Marie-Tooth disease type 4A (CMT4A) is a subtype of Charcot-Marie-Tooth disease type 4 characterized by early-onset (infancy to early childhood) of severe, rapidly progressing demyelinating, axonal, or intermediate sensorimotor neuropathy that affected her legs first and now her hands. While there's currently no cure and some days are more challenging than others, this walk , along with the support from all of you , give us hope for a brighter future for my little girl. ✨
I am participating in the Cycle 4 CMT event to raise money for the Charcot-Marie-Tooth Association (CMTA). The CMTA is a 501c3 non-profit working with world-class partners to advance treatment-oriented research through STAR (Strategy to Accelerate Research).
To people with CMT, STAR research for a cure means regaining feeling in the extremities, walking without tripping, buttoning shirts, and easily picking up change off a flat surface. STAR is synonymous with stopping the progression of CMT and living a life without limitations.
STAR is hope for a future without CMT.
Please help make a difference in the lives of those living with CMT and for our generations to come.
Together, with your support, we can reach our fundraising goal.
Thank you in advance for your generosity.
About the Chicago, IL Walk4CMT
Walk Location: Hickory Creek Preserve, Hickory Creek Hollow Shelter, 10537 LaPorte Rd. , Mokena, IL Walk Date: September 29, 2024 Walk Time: 10:00 a.m. Walk Distance: 0.5 of a mile or what ever participants are comfortable with.
After the walk, attendees are welcome to partake in a picnic lunch.
Register now to show your IL pride as we take one step closer to a cure for Charcot Marie Tooth Disease.
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