Welcome!
Thanks in advance for supporting me and Amelia!
We are participating in the Walk 4 CMT event to raise money for the Charcot-Marie-Tooth Association (CMTA). The CMTA is a 501c3 non-profit working with world-class partners to advance treatment-oriented research through STAR (Strategy to Accelerate Research).
I have suffered symptoms of CMT since I was able to walk. From lack of balance, muscle weakness/fatigue, and constant falls as a child. I was not diagnosed with CMT-1A until I was 29, after years of having issues with my left foot. Unfortunately, Amelia has CMT-1A as well. But due to early diagnosis (because of my history) and early intervention at the age of 3. She has been getting PT, and she is in a far better place than I ever was in at her age. We both have still our struggles and limitations. As my left foot's condition has worsen in the past few years.
To people with CMT, STAR research for a cure means regaining feeling in the extremities, walking without tripping, buttoning shirts, and easily picking up change off a flat surface. STAR is synonymous with stopping the progression of CMT and living a life without limitations.
STAR is hope for a future without CMT.
Please help make a difference in the lives of those living with CMT and for our generations to come.
Together, with your support, we can reach our fundraising goal.
Thank you in advance for your generosity.
Achievements
Walk 4 CMT Shirt
Raised $100 or more!
Fundraising Honor Roll
Izzy Weston
$40
Janice Jones-Thomson
$25
Jessica Pirollo
$104
Melanie Rienzi
$40
Mrs. Leslie McPartland
$52
Nick Pirollo
$25
Victoria Urbelis
$25
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