Cycle 4C - CMT4C
Welcome to our team! We are so excited to have you join us for a cycle or walk this year.
Mary Cate has CMT4C, which is a rare subtype of Charcot-Marie-Tooth
disease, a degenerative disease of the peripheral nerves. It has
affected her ability to walk, especially after childbirth, but she works
very hard to keep moving and maintain her quality of life.
disease, a degenerative disease of the peripheral nerves. It has
affected her ability to walk, especially after childbirth, but she works
very hard to keep moving and maintain her quality of life.
Over the past few years we have helped to lead a group of patients and
caregivers, along with the CMTA, to build a patient community and work
towards a cure. We are in direct contact with researchers all around the
world and have made amazing progress.
caregivers, along with the CMTA, to build a patient community and work
towards a cure. We are in direct contact with researchers all around the
world and have made amazing progress.
We currently have a number of priorities for CMT4C. There is an effort to dose a limited number of patients with an experimental gene therapy that could
offer a cure for the genetic disease. We are hoping to launch a natural
history study that will help us to understand the progression of the
disease and how to measure if a potential therapy is working. And there
are multiple researchers involved in efforts to test existing drugs
against cells and, eventually, mouse models to see if any might have an
effect.
As a member of our team, you can donate or raise money from friends and family. Everything you raise will go into the "Foresee the End of 4C" fund and is earmarked for CMT4C research.
Team Roster
Raised
$1,500
$700
$500
$250
$100
$100
$250
$100
$100
$100
$254
$0
$250
$2,233
$826
$100
$350
$100
$451
$350
$250
$2,393
$3,437
Team Gifts
$7,290
Achievements
Gold
Raised $15,000 or more!
Team Progress
of Goal
$22,265
Raised
$15,000.00
Team Honor Roll
Bickel , Jeanelle
$50
Amanda Bradley
$52
Amy Jiang
$50
Ann and Fred
$52
Anne Frances
Anonymous
Anonymous
$500
Anonymous
$100
Anonymous
Anonymous
Anonymous
$100
Anonymous
Anonymous
Anonymous
$100
Augustus Montecalvo
$104
Aviva, Rick, and Idris
$100
Avra Vrahimi
$104
Barbara Sturdivant
$100
Bernie & Mehreen Zipprich
$100
Bonnie and Kevin Akey
$200
Brian Leddin
$100
Camden
Caroline Tucker
$75
Catherine M Giannace
$104
Claire & Ken Grant
$100
David J Pascale
$100
Dix Family
$104
Donna Bonna
$104
Donna Ceglecki
$100
Doreen Hoffman
$104
Dr. Kleopas Kleopa
$104
Dr. Michael Santo
$100
E.B. + Richie + Luca!
$100
Eileen Della Volle
$50
Ellen and Tommy Gleason
Genevieve and Barry Shapiro
$104
Gillian & Nick
Hannah Gross
$100
Imogene Strauss
$100
ingrid and john
$104
Jake and Dani Bickel
James Stronski
$100
Jennifer & Larry
Jessica Underwood and Gerard Bifulco
$260
Jill Gwydir
$104
Joe and Kerry McKeon
$150
Joni
Joshua & Jeanette Henne
$100
JP Nicolaides
$500
Kate Stoddard
Kathleen Lenox
$250
Kathryn Ashley
$100
Kitty Magoo Montecalvo
$104
Laura & Mario Mangone
$500
Laure Kirk
$104
Lauren A Nicosia
$100
Lauren Grant
$150
Linda Houghtaling
$50
Lisa Saeed
$104
Liz & Don Ghent
Mary Joan Venesco
$100
Michael D Parent
$52
Michael Gleason
$100
Michaela Riggs
$100
Miss Melissa Ann Quackenbush
$500
Molly Stakston
$100
Mom and Dad/Mr. and Mrs. C.
$52
Mr. David LeBlanc
$100
Mr. Ed Zipprich
$100
Mr. Greg Gwizdz
$250
Mr. Jason Gravell
Mr. Keavy Ann Gleason
Mr. Keelin Stronski
$100
Mr. Steven Becker
Mr. Thomas Dalzell
$100
Mr. Urvi Vyas
$350
Mrs. Elizabeth H BARRETT
$100
Ms. Barbara Gleason
Ms. Barbara Gleason
$100
Ms. Diane Leccese
$416
Ms. Emily Stronski
Ms. Fran Pechtol
$100
Ms. Jessica O'Neill
$100
Ms. Karen Wang
$250
Ms. Theresa Gleason
$100
Nehemiah Owens
$100
Nina McCloskey
$150
Philomena Burke
$104
PUPPY BICKEL
$100
Robin C Bickel
$500
Robin Post
$52
Sarina and Casey
$312
Sonrisa Cooper
$100
The Camba Family
The Havlicek Family
$250
The Maidas
$50
Tina Pflaster
$260
Tom Dalzell
$150
Tom Felago
Yoonie Heo
$104
Top Donors
Anonymous
Mr. Keavy Ann Gleason
Camden
Ms. Barbara Gleason
Robin C Bickel
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