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May is Lupus awareness month!!
Around this time 5 years ago I was diagnosed with Lupus. This was the start to a new journey and perhaps one of the most challenging experiences of my life, but it has also been a time of incredible growth, resilience, and hope. Lupus is a chronic autoimmune disease where the immune system attacks the body's own tissues and organs, causing inflammation and damage.
When I was first diagnosed with lupus, it felt like my world had turned upside down. The fatigue, joint pain, fevers and skin rashes were just the beginning. Hospitalizations became frequent, as my body waged a war against itself. In the last few years there have been countless treatments, tests, transfusions/infusions, and central lines. Each day has brought new challenges and uncertainties.
Despite the physical and emotional toll, I learned to find strength in the smallest victories. The days when I could get out of bed, the moments of laughter with family and friends, and the support from my healthcare team became light in the midst of darkness. Every needle prick, every failed treatment and every hospital stay became a testament to my determination to keep fighting but most importantly my faith remaining in God.
There were times when the pain felt overwhelming and the future seemed uncertain. But it was in these moments that I discovered an inner strength and realized that while lupus is a part of my life, it does not define me. I am more than my illness. I’ve learned to live one day at a time and to listen to my body. Although currently there is no cure I am hopeful for one someday.
Sharing my story has become a crucial part of my healing journey. By opening up about my experiences, I hope to raise awareness about lupus and to offer hope to others who are facing similar battles.
On June 9th I have partnered with Lupus Ontario to host the first Walk for lupus in London to raise awareness and funds for research.
If you wish to join my team on the walk please register or make a small donation
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