My story, so far...
In August 2018, I ended up the Guelph General Hospital ED with a massive headache. The ABSOLUTE worst I’ve ever experienced! This resulted in a flurry of activites including an admission to hospital (where my GGH peeps were all super amazing), IV meds, CT’s and MRI’s of my head and the shocking discovery of a number of small lesions on the L side my brain that were causing ++ swelling.
The lesions (a few more were later found on my R side too - grrrr.) looked very much like a possible Brain Lymphoma (cancer). Sooooo, after many, MANY tests, multiple visits to both a neurosurgeon and neurologist, and steroids to bring the swelling down, the GOOD news was that brain cancer was finally ruled out (PHEW!) However, the BAD news was that Multiple Sclerosis was ruled in. (DANG IT!)
It actually turns out that I have a rare variant (figures - ha ha!) of MS, known as Balo Sclerosis. I started a weekly injection (boo!) in February 2019 - which does result in weekly flu like symptoms, but overall quite manageable really! The goal is that the meds will work to keep any symptoms and/or relapses at bay and frankly, if a weekly poke keeps it on the down low, I'll happily continue to do it!
I'm asking you for yet a bit more support! :) The first year I participated (2019) , my amazing girlfriends (Patti, Susan and Tina - PLUS a tonne of other friends and family members!!) came together in a big group to walk - however due to the Covid-19 pandemic, last years walk (2020) was virtual! Unfortunately it appears that 2021 will still be a solo walk about or with your 'bubble' ... however, we are still hoping to raise money for this cause!
This is a scary, progressive, unpredictable disease affecting so many Canadians! I appreciate every penny, especially as I'm aware that this year has been a very difficult one for ALL of us!! Please stay safe!!!
As much as I’m not super thrilled to have to give myself an IM injection each week, I’m happy to know that there ARE some options for treatment out there AND THATS WHY WE WALK! YOU can help!! I'd appreciate ANY donations!
Our team is called "No MSing Around"! ANY AMOUNT, large or small - would be appreciated! We'd also love to have people come out and walk with us! The more, the merrier!
Thanks again to EVERYONE who has donated!!! You guys rock!!
Pauline (Maddox and Jonah)
INFO _ Canadians have one of the highest rates of MS in the world, and on average, 11 Canadians are diagnosed with this unpredictable illness every day. We don’t know what causes MS, and we don’t have a cure. Yet.
I am participating in MS Walk because I want to support the world’s leading researchers discover the cause, treatments and cure for MS. Leading-edge research and support programs have improved the quality of life for people affected by MS.
When you make a donation to my fundraising, you are helping continue this incredible work.
Thank you for supporting our MS Walk community. We wouldn’t be where we are today without your support.