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New site goes live this week
 
New site screen capture - take actionVisit us on Wednesday to check out our chapter's newly redesigned Web site.
 
We welcome your suggestions and ideas, so please let us know what you think!

Please update your bookmark to take you to http://www.nationalmssociety.org/pae for a seamless transition.


Stimulus bill could help people with MS

Congressional leaders have been working on legislation to help restore the nation's economy. Many health care programs will benefit from the stimulus package, including:

National Institutes of Health (NIH): $3.5 billion of funding for projects including biomedical and stem cell research

Federal Medical Assistance Percentages (FMAP): All states will get at least a 4.9 percent increase under FMAP to help maintain Medicaid programs

Health Information Technology (IT): $20 billion in funding to establish government standards for health IT programs by 2010, includes financial incentives for participation and privacy and security protections

COBRA Insurance: Expansion of coverage including a 65 percent subsidy covering premiums for up to 12 months

The House voted in favor of the bill, and the Senate is expected to vote on the legislation soon. Take Action Now! Click here to encourage your Senator to vote in favor of the economic stimulus package. Click here to be notified of future advocacy issues.


Cladribine trials enrolling in Philadelphia

German drugmaker Merck KGaA says its experimental pill cladribine reduced MS relapses by 55 to 58% in a two-year study, the first oral MS medication to complete such a study.

The drug also reduced lesion activity when measured by MRI and slowed disease progression, Merck said. Cladribine previously has been used to treat leukemia.

The company said it is on track to submit an application for approval to European and U.S. regulators by the middle of this year. Merck KGaA is not related to Merck & Co., based in Whitehouse Station, N.J.

Two sites in Philadelphia are currently enrolling patients in a clinical trial of cladribine in combination with Rebif, Avonex or Betaseron in people with relapsing forms of MS. Click here for more information.

Learn more about the trial results here.


Stem cell "reboot" may show promise

Results from a small study at Northwestern University show that transplanting individuals’ own blood stem cells may turn off the immune attack in MS.

In this uncontrolled trial, scientists found that the procedure was relatively safe, and after an average of 37 months, none of the 21 people in the study had progressed, a significant portion experienced a reversal of at least 1 point on their disability scores and 76% remained free from relapses.

It will take larger-scale, controlled trials to determine whether this expensive, potentially risky procedure is superior to other approved treatment options.

Learn more.


Ski with World and Olympic Champion Bjorn Daehlie at American Birkebeiner

Birkie Skiers for Cures will Join the Movement with the National Multiple Sclerosis Society in the fight to cure MS. Participants in any of four races can earn the opportunity to ski with Champion skier Bjorn Daehlie.

Sign up and collect donations from friends and family and turn them in when picking up your race bibs for the American Birkebeiner races, the largest cross-country ski festival in North America, held February 19-21 in Wisconsin.

Learn more.


New Jersey Lobby Day 2009

Make your voice heard - and your mark against MS - at New Jersey Lobby Day 2009.

MS advocates are taking over Trenton to:

Learn about important legislative issues affecting people with MS
Learn the basics of advocating for themselves and MS issues in Advocacy 101 training
Hear from legislators
See laws being made at an assembly voting session
Bring attention to MS during MS Awareness Week

Lunch will be provided and transportation will be available.

Please register by calling Ellen Mitchell at 1-800-548-4611 or e-mailing ellen.mitchell@pae.nmss.org.


Sign up for MSConnection E-news 

Every two weeks, we send the latest about MS-related news and events to thousands of inboxes across the Greater Delaware Valley and beyond. To have your name added to our e-list, add your e-mail address to the box below.

Join the National MS Society, Greater Delaware Valley Chapter mailing list
Email:
 

Our mission:
To end the devastating effects of multiple sclerosis.

This site is updated every week. If you want to see a back article, please visit our archives.

 

MS Stops People From Moving. We Exist to Make Sure It Doesn't.
If you or someone you know has MS, we can help.
Services include:

Information/referral
Medical transportation
Home care
Health Insurance Initiative  
Family programs
Workshops
Self-help groups
Medical equipment
Home care
Financial assistance
Classified ads

For information about the assistance available from our chapter, click here.

Program Registration
Upcoming events include:

workshops
teleconferences
research study updates
and more.

Check out our calendar and register now!

Click here to view our calendar of upcoming wellness classes.
Be an MS Activist
T-shirt

Sign up 20 people for Action Alerts and receive an MS Activist T-shirt!

To download forms, click here
. We'll also send you a T-shirt for meeting with your legislator and sharing your story.

Join the Movement
””
walk ms logo

Whether you want to be part of a walk, bike or another kind of fundraising event, we have a spot for you. Check out our list of upcoming events.
For Health-Care Professionals

We provide resources for people living with MS as well as for caregivers.

Click here for our information and resources specifically for health-care professionals.

Podcasts Now Available

You can now listen to or download recordings of workshops and special presentations our podcast page.

You can also request any available podcast on a CD or other format for free by sending us an e-mail.

Get On and Stay On MS Drug Therapy

Scientific evidence shows that these therapies have the ability to decrease the number of attacks a person with relapsing MS would expect to have over time. Learn more.

Need a Username and Password?

Need a username and password? Click here.

Questions?

Click here to visit our FAQ page.

 

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